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7 years
Brooklyn: Age Two Seven years ago today I shared these words on my blog: MONDAY, MAY 21, 2007 Diagnosis Day We got “the call” tonight. Brooklyn’s blood tests were back and she has been officially...
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Rockin’ For Rett
I can’t believe that this is our SIXTH year for Rockin’ For Rett! We are so pumped – each year gets bigger and better! I cant thank Joe & Libby and the entire Piggy’s crew enough. Mike Conley is...
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Rockin’ for Rett
This year’s Rockin For Rett was AMAZING!!! I still can’t believe that this was our SIXTH year. Where has the time gone? I am still SO thankful that Libby came to me wanting to host an event, wanting...
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Life.
Last month was Awareness month and when I think about Down Syndrome and Rett Syndrome facts, awareness, and acceptance I could go on and on with stats, stories, symptoms, etc. OR I can post one...
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Farewell 2014….
I will start this post with an apology…..what a blog slacker…..I thought it might be a good idea to do an end of the year post to touch on some of the highlights (and not so “high”lights of the year....
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Team Brooklyn – Disney Princess 1/2 Marathon
I am taking 2015 off from running the Disney Princess 1/2 Marathon. I will be there to CHEER on all of the runners and will be helping out with all of the GP2C events and hanging out with my Rett...
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Ragnar 4 Rett
This weekend six AMAZING women will we running 182 miles for 182 girls with Rett Syndrome in the #SoCalRagnar relay race. They run because our girls can’t and because our hope is that one day they...
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8 years ago
2007: year of diagnosis I wonder if our diagnosis day was not so close to her birthday if I would still remember it each year? Early on….sure, of course – 1st year, second year, 5th year maybe. But...
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Best Shoes EVER
Have you ever had a pair of shoes that made you cry? ME either……until this week. When Brooklyn received THESE amazing personalized JUST FOR HER converse shoes in the mail! As you can tell by the look...
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Hope.
Let that sink in for a second. How much hope does this statement give you? For me it is overwhelming! I can’t imagine that there are many people that read this blog whose life has not been touched by...
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